---
title: "FOP Registry - Reviews, Revenue and Downloads in United States | Apple App Store"
description: "The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and research"
---

# FOP Registry — United States
> Patient-Driven Data for a Cure

![FOP Registry App Icon](https://is1-ssl.mzstatic.com/image/thumb/Purple221/v4/d1/9a/78/d19a7871-15cd-d05b-e57c-23dbd8295a8a/AppIcon-0-0-1x_U007emarketing-0-11-0-85-220.png/100x100bb.jpg)

**Developer:** [INTERNATIONAL FOP ASSOCIATION](https://apptail.io/developer/international-fop-association-gDdf)
**Category:** Medical
**Rating:** 5.0/5 (1 ratings)
**Price:** Free
**Bundle ID:** com.difz.ifopa.appstore
**Store:** Apple App Store
**Country:** United States
**Version:** 1.6 (released 2025-08-28)
**Original Release:** 2019-11-14
**Languages:** English

**App Store Link:** [Download on Apple App Store](https://apps.apple.com/us/app/app/id1486221531)
**AppTail Page:** [https://apptail.io/app/fop-registry-pZtd/united-states](https://apptail.io/app/fop-registry-pZtd/united-states)

## FOP Registry Description
The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder.
 
Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information. 
 
The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.

## FOP Registry Screenshots
- [Screenshot 1](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource122/v4/78/fa/70/78fa702d-ddcb-9af5-770d-9bc74e5f2ea0/cc873490-2d9b-4e49-90f4-ff77a3e968af_My_project2.png/1242x2688.png)
- [Screenshot 2](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource122/v4/0b/91/fc/0b91fcc2-2195-7ad9-4d81-88f12e217fda/4732d611-18fa-40ff-9456-8cdc0f13dee9_My_project__U00281_U0029.png/1242x2688.png)
- [Screenshot 3](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource112/v4/7e/cc/06/7ecc0603-68dc-6081-4554-77cc55d409de/19b6b121-51de-4af4-a7d1-b20ac0577925_My_project__U00282_U0029.png/1242x2688.png)
- [Screenshot 4](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource112/v4/79/cc/ea/79cceae7-5d27-4792-9143-d56c9beaad36/175e1505-1114-4da2-af8b-8c8fc132482a_My_project.png/1242x2688.png)

## FOP Registry Rating Breakdown in United States
- 5 stars: 1 (100%)
- 4 stars: 0 (0%)
- 3 stars: 0 (0%)
- 2 stars: 0 (0%)
- 1 stars: 0 (0%)






## FOP Registry Available In
- [France](https://apptail.io/app/fop-registry-pZtd/france)
- [United States](https://apptail.io/app/fop-registry-pZtd/united-states)
- [Belarus](https://apptail.io/app/fop-registry-pZtd/belarus)
- [Canada](https://apptail.io/app/fop-registry-pZtd/canada)
- [Switzerland](https://apptail.io/app/fop-registry-pZtd/switzerland)
- [China](https://apptail.io/app/fop-registry-pZtd/china)
- [Denmark](https://apptail.io/app/fop-registry-pZtd/denmark)
- [Algeria](https://apptail.io/app/fop-registry-pZtd/algeria)
- [Egypt](https://apptail.io/app/fop-registry-pZtd/egypt)
- [Spain](https://apptail.io/app/fop-registry-pZtd/spain)
- [Greece](https://apptail.io/app/fop-registry-pZtd/greece)
- [Croatia](https://apptail.io/app/fop-registry-pZtd/croatia)
- [Hungary](https://apptail.io/app/fop-registry-pZtd/hungary)
- [Australia](https://apptail.io/app/fop-registry-pZtd/australia)
- [Ireland](https://apptail.io/app/fop-registry-pZtd/ireland)
- [India](https://apptail.io/app/fop-registry-pZtd/india)
- [South Korea](https://apptail.io/app/fop-registry-pZtd/south-korea)
- [Kazakhstan](https://apptail.io/app/fop-registry-pZtd/kazakhstan)
- [Mexico](https://apptail.io/app/fop-registry-pZtd/mexico)
- [Malaysia](https://apptail.io/app/fop-registry-pZtd/malaysia)
- [Norway](https://apptail.io/app/fop-registry-pZtd/norway)
- [New Zealand](https://apptail.io/app/fop-registry-pZtd/new-zealand)
- [Peru](https://apptail.io/app/fop-registry-pZtd/peru)
- [Philippines](https://apptail.io/app/fop-registry-pZtd/philippines)
- [Pakistan](https://apptail.io/app/fop-registry-pZtd/pakistan)
- [Türkiye](https://apptail.io/app/fop-registry-pZtd/turkey)
- [Ukraine](https://apptail.io/app/fop-registry-pZtd/ukraine)
- [Indonesia](https://apptail.io/app/fop-registry-pZtd/indonesia)
- [Belgium](https://apptail.io/app/fop-registry-pZtd/belgium)

---

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