--- title: "RareGuru: Rare Diseases - Reviews, Revenue and Downloads in United States | Apple App Store" description: "If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your s" --- # RareGuru: Rare Diseases — United States > Caregiver & Patient Community ![RareGuru App Icon](https://is1-ssl.mzstatic.com/image/thumb/Purple221/v4/ec/26/7b/ec267b90-0c0d-3220-f24e-e3f9c73fac15/AppIcon-0-0-1x_U007emarketing-0-10-0-85-220.png/434x0w.png) **Developer:** [RareGuru](https://apptail.io/developer/rareguru-ybTb) **Category:** Medical **Rating:** 4.8/5 (47 ratings) **Price:** Free **Bundle ID:** com.rareguru.app **Store:** Apple App Store **Country:** United States **Version:** 2.0.0 (released 2024-04-01) **Original Release:** 2020-04-24 **Languages:** English **App Store Link:** [Download on Apple App Store](https://apps.apple.com/us/app/app/id1497253264) **AppTail Page:** [https://apptail.io/app/rareguru-rare-diseases-ELFc/united-states](https://apptail.io/app/rareguru-rare-diseases-ELFc/united-states) ## RareGuru Description If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru. RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive. Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process. Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers. Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision. Don’t let your disease isolate you from the world. Connect and learn together with RareGuru. RareGuru Features: Connect, Share & Network - Create a private or public profile sharing what information you’re comfortable with. - RareGuru matches you with other users who share a similar diagnosis or symptoms. - Filter your matches based on location, age, gender, and user type. - Message through private or group chats. - Safe and secure social networking. Symptom Tracker - Track symptoms and take notes to evaluate your condition. - Export data trends for sharing with doctors and specialists Rare Disease and Chronic Illness Database - RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms. - The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). - Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity. .Global Disease map - Search the global disease map to see where certain diseases are more or less rare. - Find out how many RareGuru users share your diagnosis in any location. Rare Charities - RareGuru spotlights organizations serving the rare disease community. - Users can select their favorite rare charities during onboarding. RareGuru helps connect and support those experiencing rare diseases. Download today and join us. ## RareGuru Screenshots - [Screenshot 1](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource122/v4/fb/78/82/fb788242-d356-1782-4f3b-61c430ec6e35/3757419e-ee1b-4211-90d7-f5a736fffbc2_RareGuru_iOS_ScreenshotMocks_Screen_1.png/392x696bb.png) - [Screenshot 2](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource112/v4/3a/09/df/3a09df38-95fc-0630-9bee-e9f6ff94d618/10a760d9-d2f4-4486-8de1-4d1fc9053986_RareGuru_iOS_ScreenshotMocks_Screen_2.png/392x696bb.png) - [Screenshot 3](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource112/v4/7c/f1/90/7cf1909a-52c7-8028-de5e-f6f3a8816b3f/7e258d5c-9b93-42c5-9a70-2b7c5cc7b7c6_RareGuru_iOS_ScreenshotMocks_Screen_3.png/392x696bb.png) - [Screenshot 4](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource211/v4/4c/57/9b/4c579bd0-406b-ba99-2382-4e6f8f987f4c/a125f5ee-b926-405c-aca8-1bd386bbf6eb_RareGuru_iOS_ScreenshotMocks_Screen_4.png/392x696bb.png) - [Screenshot 5](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource211/v4/36/b0/93/36b0933b-8b93-c330-8717-d21b49307ce1/7eb21730-bc01-4f7b-88e6-f91aa2cfd110_RareGuru_iOS_ScreenshotMocks_Screen_5.png/392x696bb.png) - [Screenshot 6](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource221/v4/c5/4d/52/c54d52eb-6492-986c-65f0-f1f3655b3930/96d66b19-5311-4710-9bf2-36f4ec2d39ca_RareGuru_iOS_ScreenshotMocks_Screen_6.png/392x696bb.png) - [Screenshot 7](https://is1-ssl.mzstatic.com/image/thumb/PurpleSource211/v4/38/0a/c7/380ac7e1-5468-714d-d2a4-ec2f440dbdd1/de2c26b7-6dab-4615-8ea8-745a5ee8357b_RareGuru_iOS_ScreenshotMocks_Screen_7.png/392x696bb.png) ## RareGuru Rating Breakdown in United States - 5 stars: 45 (96%) - 4 stars: 0 (0%) - 3 stars: 0 (0%) - 2 stars: 0 (0%) - 1 stars: 2 (4%) ## RareGuru Reviews in United States ### ***** "I'm almost in tears, this has been such a touching experience." I've spent years with minor gripe that seemed just a bit abnormal for my age but I also wasn't the nicest to my body when younger so I dismissed them. I came to find Rare Guru through an article I read, and really thought nothing of it at first besides it being a neat idea and my own experience in tech and frustration about my medical issues. I've had a suspicion that I had something weird aka rare that was not being diagnosed. Well thanks to the article which feature this app and its founders, I asked for a lab test that probably nobody would ever have ordered because I don't fit the clinical profile. I mean, almost not at all. Turn out it's abnormal and highly suggestive of hypophosphatasia. There are 10s of thousands of people using this app, and the founders took time to talk to me through the app and even a video conference and provide me with lots of info since it is something they are familiar with. My mind is truly blown. I finally have some answers for decades long questions that I probably would not have ever found was it not for that article and the story of Heather, her daughter and the app they created. I know this review isn't really about the features of the app, but since I work in the internet tech space, let me just say that it's not the features and functionality or lack of bugs that make a great app. It's whether it is effective for its intended purpose. I am one fretful individual who has proved that truly is the core of this app. It has been proved effective and I get to join an exclusive club of about 500 out of 330,000,000 people with this diagnosis. Let that % sink in. I'm off to buy a lottery ticket now. Thank you, Heather, Bennett and family! -- MysteryShopper12, 2020-12-08 ### ***** "Amazing App" This app has solved so many problems for me. From connecting me to symptoms to helping me find a community, RareGuru has been a lifesaver. -- galaxy sloth!!!,, 2020-09-30 ### ***** "Dream come true" As someone with a rare disease that affected about 1 in 100,000 to 1 million people I’ve been looking for a platform to connect with others with the same thing and a place to track when my symptoms aren’t regular! If I could rate this 10 stars I would. Everyone needs to know about this app! -- smumps, 2020-07-29 ### ***** "happy 2 find teens like me" This app is rlly cool and I was so relieved 2 find other teens like me! IDK that there was an app like RG!!!! It’s so cool and is very sleek and easy 2 use. It has helped me to DM other people going through the same stuff as me. I don’t feel so alone ⭐️ ⭐️ ⭐️ ⭐️ ⭐️ -- war man 2, 2020-05-15 ### ***** "Genius!" As a healthcare professional I can’t say how much this app was NEEDED!!! So helpful on so many levels even if you don’t have a rare diagnosis. Thank you for bringing this into existence! -- PediatricDentalView, 2020-05-06 ### ***** "An amazing resource" Finally an app that is extremely easy to use and allows you to choose between caregiver or patient. Love the community aspect of Rare Guru! -- Rubyltd, 2020-05-03 ### ***** "Positive community and resources" This is such an inspirational app. I love the idea of bringing together isolated individuals and groups in the rare disease community to share and learn in a positive environment. This is what the internet was made for! After reading the founder’s story and some of the other shared stories on the blog, I’m really excited to see how this app grows. This has potential to be life changing for those of us who care for others or who suffer from a rare disease ourselves. -- binary hipster, 2020-04-30 ### ***** "Incredible Resource" Everything you need to know and connect is right here! It’s bringing me closer to this who are just like me while giving me so much information. -- nguyenv17, 2020-04-27 ### ***** "Awesome!" Very easy to use and very exciting to be able to talk to people with experiences similar to ours. This is a great tool for our family. We are so happy that we found RareGuru. -- Leftysully, 2020-04-25 ### ***** "Amazing Idea!" I think this is an amazing outlet to connect people who otherwise may not find the support network they need! -- ashgerm, 2020-04-25 [View all RareGuru reviews and detailed analytics on AppTail](https://app.apptail.io/signup?utm_campaign=ai-crawl&utm_content=reviews) ## RareGuru Discovered Keywords - chronic disease - chronic - rare diseases ## Apps Similar to RareGuru - [Symptom Tracker | OpenCare](https://apptail.io/app/symptom-tracker-opencare-yTG/united-states) - [Creda Health](https://apptail.io/app/creda-health-HUlb/united-states) - [Corra: Symptom Tracker](https://apptail.io/app/corra-symptom-tracker-Rmmb/united-states) - [Embleema](https://apptail.io/app/embleema-aoac/united-states) - [Healp - Your Health Community](https://apptail.io/app/healp-your-health-community-kSAc/united-states) - [LonghaulTracker](https://apptail.io/app/longhaultracker-syCc/united-states) - [ViuHealth: Autoimmune Care](https://apptail.io/app/viuhealth-autoimmune-care-mdTc/united-states) - [juli: Mood & Health Tracker](https://apptail.io/app/juli-mood-health-tracker-eDBd/united-states) - [PatientsLikeMe](https://apptail.io/app/patientslikeme-xcyl/united-states) - [Health Story AI](https://apptail.io/app/health-story-ai-rnVp/united-states) ## RareGuru Available In - [United States](https://apptail.io/app/rareguru-rare-diseases-ELFc/united-states) - [Canada](https://apptail.io/app/rareguru-rare-diseases-ELFc/canada) - [Australia](https://apptail.io/app/rareguru-rare-diseases-ELFc/australia) - [New Zealand](https://apptail.io/app/rareguru-rare-diseases-ELFc/new-zealand) - [Sweden](https://apptail.io/app/rareguru-rare-diseases-ELFc/sweden) - [Ireland](https://apptail.io/app/rareguru-rare-diseases-ELFc/ireland) - [United Kingdom](https://apptail.io/app/rareguru-rare-diseases-ELFc/united-kingdom) --- ## About AppTail [AppTail](https://apptail.io) is a mobile app intelligence platform providing app analytics, ASO (App Store Optimization) tools, keyword tracking, competitor analysis, revenue estimates, and review monitoring for iOS App Store apps. Track your app's performance, discover ranking keywords, monitor competitors, and analyze market trends. - [Search Apps](https://apptail.io) - [Top Charts](https://apptail.io/top-iphone-apps) - [Sign Up for Full Access](https://app.apptail.io/signup?utm_campaign=ai-crawl&utm_content=footer) *Data provided by [AppTail](https://apptail.io) - Mobile App Intelligence Platform*