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You + ME Symptom Tracker

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Description

Welcome to the You + ME Registry mobile app!
The You + ME Registry is a collection of patient-reported data from people living with myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS), people with long-term symptoms following a viral infection, and control volunteers. People living with these illnesses have invaluable information to share based on their lived experience. You + ME gives patients a platform to share what they know about their disease for research. The resulting large dataset can be used by researchers around the world to better understand disease causes and develop treatments.
After signing up for the Registry in a secure web portal, participants provide health information through a series of surveys. They also use the You + ME mobile app to record symptoms, activity, and other factors related to their disease over time.
You + ME mobile app users are asked to consistently report on a core set of symptoms: fatigue, brain fog, unrefreshing sleep, orthostatic intolerance (lightheadedness), and post-exertional malaise (PEM). Beyond the 5 core symptoms, people can self-select symptoms relevant to them for tracking in the app. There are additional screens for logging life events (e.g. socializing with family/friends), activity levels, and an overall rating of wellness. Graphing functionality within the app provides trends in easy to read, comprehensive charts that users can use to monitor their health and share with loved ones or healthcare team.
How to use:

- Sign up for the You + ME Registry, create a profile, and complete the Informed Consent: https://youandmeregistry.com
- Complete the baseline surveys in the secure web portal
- Download the mobile App
- Login using the You + ME username (email) and password you created when you signed up
- Get tracking!
Working together, we can answer the questions that are most important to people living with ME/CFS and other long-term illnesses.
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User Rating
App is not rated in Spain yet.
Ratings History

You Reviews

Pointless

Unchainedamz on

United Kingdom

Why even be available to download in UK when you can’t use it outside the US??

What a shame

MaggieModge on

United Kingdom

Like the other user said - can’t get past log in page - very disappointed

Won’t let me sign in

Phoenix108 on

United Kingdom

I added this app and had an account ages ago but now it won’t let me sign in and doesn’t recognise my email. I assume all my data was deleted? Bit crap. No explanation. Can’t sign in. I was hoping to use when I was doing a bit better, but as it won’t let me sign in or find out what happened I guess I won’t. I see here several reviews saying similar so it may be as I’m in the U.K. can’t understand why that would be an issue as I use a lot of international apps. So give it 1 star. Will improve star rating if I regain access. Waste of my energy inputting data which it deleted. Not fair for ill patients that used precious energy to input data.

Can’t access

Evskiday on

United Kingdom

Looks great. Installed app. Swiped through intro screens. Watched video. Can’t register. Two stars as looks like it would be so good.

Limited Access

UOPrime on

United Kingdom

It looks like a really good app, however you can’t get past the login page in the app. I looked it up online & thought I would do it on their homepage; where I found that for some reason access to sign up is limited to the USA or Australia. Even being able to use the app unconnected would be helpful to those outside of these areas, I don’t really see why this can’t be an option.

Can’t even use app or create an account

CharlesStCharles on

United Kingdom

It literally fails you at the first hurdle. I don’t think anyone looks after this app anymore.

Stuck at the login page

molglol on

United Kingdom

How do I create an account? It won’t let me past the login page...

No access

andieh65 on

United Kingdom

I would love to use the app but it doesn’t allow access.

Unable to register

Pricklyleaf on

United Kingdom

Looks like a good app but you need to register to use it and there is no option to register 🤦‍♀️

Unusable in UK

aroseprynn on

United Kingdom

Maybe say from the outset that you have to register to use the app and you can’t register if you’re outside the US. Waste of time

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App Info

Category
Medical
Languages
English
Recent release
1.5.0 (2 years ago )
Released on
Jan 17, 2020 (4 years ago )
Last Updated
11 months ago