Needs to be updated
A few things: it should be clarified that this is for newly diagnosed women. I’m actually almost through radiation, all treatment decisions having been made- at least for now. There needs to be updated information about immunotherapy, e.g. Keytruda as a newly approved regimen for TNBC. Or, if not approved, is being used. Cool caps, e.g., Paxman, are an option and can save a large % of hair. There needs to be an update re: support available during COVID-19. Halfway through my chemo I was not allowed a support person, etc. It took a while for online support groups to start and any comfort derived from friends, co-workers (all working from home) is virtual. If a woman had no family she would be alone with this. So Linda’s suggestion that this is the time to ask for what you need may be moot. RE: the app, it would be nice to have the option to skip a section, although I’m thinking you want to be certain all information has been given. Very empathic and, surprisingly, human character, so kudos for that!
