Epilepsy Journal

Thank you for creating this app. Now my automatic response when a seizure starts is to reach for my phone and hit the big seizure button. This helps warns people around me what is happening as I cannot talk until it finishes. I have the majority of them tracked since 2019 and a picture of my triggers - thank you!

I’ve had epilepsy for 6 years following a brain injury and initially tried several apps to track my seizures - this is undoubtedly the best by far. I had a craniotomy four weeks ago for my epilepsy and the data I was able to extract from this app aided my neurosurgeons and epilepsy team to make decisions for my care. I can’t thank those behind the scenes enough.

I love this app and I have tried many others. I can put in my own triggers, activities, medications, fit types and notes like the last time I took paracetamol which helps keep track when my memory is affected. It helps me record fits post ictal because I’ve tailored it. It uploads info across my ios devices. I produce reports for my epilepsy specialists which are accurate and they are impressed too.

Genuinely so amazing! This app has helped me recognise certain trends in my seizures and when they happen that I didn’t notice on the paper records that I kept! THANK YOU TO THOSE THAT MADE THIS APP POSSIBLE 💜

A decent effort. Good design for comparative data... however... I’m desperately looking for something like this with Apple Watch compatibility, so I don’t have to have my phone with me all the time and I can integrate things a little better. I like the seizure recording method but it’s a little annoying that records can’t be amended after the fact, which would be important for a watch app (it likely wouldn’t be that precise on its own).

This was a great app at first however after amending meds and changing the reminders the app is still reminding me to take the old meds. This is clearly a bug. It is also sending me reminders for future doses for dates that have not passed yet.

I suffer with multiple seizures a week so having this app is so handy to keep track of when I’m having them. The only downside to the app is that I try to input medications that I’m on and the app shuts down completely. Other than that problem it’s great!

I downloaded the app to track new different seizures I think my son is experiencing. This makes it important for me to be able to write notes in the seizure log. The app wouldn’t allow the page to scroll down so I could actually see the input boxes above the screen keyboard, I couldn’t even copy into it. This made the app useless to me and so I had to delete.

This is still my favorite app to use for tracking my seizures throughout my day. I love it’s simple interface, the graphs and data provided, and the customizable seizure options! Features to consider: I would LOVE if the timer didn’t stop counting when my screen goes dark (I can’t keep track of my phone screen during seizure). I would also LOVE a widget for Apple, so that opening and tracking a seizure can happen with one tap.

Like this app a lot to monitor my son’s seizures, but I wish I could figure out how to add this to his Apple Watch! I also would like to be able to go back into the day of seizures that have already been recorded without having to go into the calendar. Finally, I wish it would be able to alert me on my phone app each time he enters a seizure from his phone.