Description
The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder.
Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information.
The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.
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Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information.
The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.
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FOP Registry FAQ
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Is FOP Registry free?
Yes, FOP Registry is completely free and it doesn't have any in-app purchases or subscriptions.
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Is FOP Registry legit?
Not enough reviews to make a reliable assessment. The app needs more user feedback.
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How much does FOP Registry cost?
FOP Registry is free.
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What is FOP Registry revenue?
To get estimated revenue of FOP Registry app and other AppStore insights you can sign up to AppTail Mobile Analytics Platform.
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App Info
- Category
- Medical
- Publisher
- INTERNATIONAL FOP ASSOCIATION
- Languages
- English
- Recent release
- 1.5 (1 month ago )
- Released on
- Nov 14, 2019 (5 years ago )
- Also available in
- France, United States, Canada, China, Spain, India, South Korea, New Zealand, Ireland, Malaysia, Denmark, Greece, Algeria, Egypt, Norway, Pakistan, Türkiye, Ukraine, Belgium, Belarus, Hungary, Kazakhstan, Switzerland, Mexico, Australia
- Last Updated
- 2 months ago
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