FOP Registry

Patient-Driven Data for a Cure

Description

The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder.

Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information.

The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.
Hide Show More...

Screenshots

FOP Registry FAQ

  • Is FOP Registry free?

    Yes, FOP Registry is completely free and it doesn't have any in-app purchases or subscriptions.

  • Is FOP Registry legit?

    Not enough reviews to make a reliable assessment. The app needs more user feedback.

    Thanks for the vote

  • How much does FOP Registry cost?

    FOP Registry is free.

  • What is FOP Registry revenue?

    To get estimated revenue of FOP Registry app and other AppStore insights you can sign up to AppTail Mobile Analytics Platform.

User Rating
App is not rated in Egypt yet.
Ratings History

FOP Registry Reviews

No Reviews in Egypt
App doesn't have any reviews in Egypt yet.

Store Rankings

Ranking History
App Ranking History not available yet
Category Rankings
App is not ranked yet

FOP Registry Installs

Last 30 days

FOP Registry Revenue

Last 30 days

FOP Registry Revenue and Downloads

Gain valuable insights into FOP Registry performance with our analytics.
Sign up now to access downloads, revenue, and more.

App Info

Category
Medical
Languages
English
Recent release
1.5 (1 month ago )
Released on
Nov 14, 2019 (5 years ago )
Last Updated
2 months ago
This page includes copyrighted content from third parties, shared solely for commentary and research in accordance with fair use under applicable copyright laws. All trademarks, including product, service, and company names or logos, remain the property of their respective owners. Their use here falls under nominative fair use as outlined by trademark laws and does not suggest any affiliation with or endorsement by the trademark holders.