ME/CFS Pacing

Ich habe die App für mein CFS im Rahmen von PostCovid runtergeladen. Ich betreibe Pacing schon länger, aber nur so nach Gefühl, das hat mal besser, mal schlechter geklappt. Die App ist sehr hilfreich, man hat einen sehr viel besseren Überblick darüber, was man schon alles getan hat und wieviel Energie noch übrig ist. Durch die sehr flexiblen Einstellungsmöglichkeiten kann man die App der eigenen Situation sehr gut anpassen. Mir hilft sie sehr gut!

Thank you for this app especially because it is free. It is not easy and I needed some time to estimate my activities properly. Unfortunately I don't know English very well, but the good thing is that I can make my own entries in German. Hopefully this app can protect me from upcoming crashes! Thanks for this help 🙏🏽

I love this app, it’s so handy to work out what’s making you crash. The only problem is, it crashes too! 😭

This app has really helped to keep track of my activities and energy use. It encourages me to rest and do meditation and relaxing activities to conserve my energy. I feel less guilty ‘doing nothing’ as I can clearly see that it’s what I need to keep me from crashes and PEM.

This app has really helped me understand pacing and how it can benefit managing ME. I want to continue using it, however the cumulative calculator seems to not work past 2/3 days or there is an error with the calculations which makes it redundant. If this is fixed it would be a really great app. It would also be useful to alter past days when you get behind with logging activities or energy levels. Since these are often the busy days that you then need to account for when you have time afterwards.

Was finding this app really helpful to try and get my head around managing my fatigue. It was useful to be able to log activity + drains & refills. But it has now totally stopped saving anything I add. Will let me click into an activity and scroll to the amount of time done but doesn’t save the data of adjust my energy balance. Unfortunately this renders the app completely useless. I hope it can be fixed???

I haven’t quite been able to get my head around the ‘energy units’ side so I just use the minutes and equate them to my energy levels instead, I guess it’s finding a system that works for you and being able to quantify your personal energy levels for the activities in your life. I’ve only used this just under a week but it’s helping me pace myself in a way I haven’t been able to before and it’s helping me come out of a real slump. Thanks for creating this app. I would definitely recommend it but I think it’s about finding the best way that it works for each individual which is something you have said in the ‘help’ section anyway.

There are a couple of UX problems, but this is absolutely vital to recovery from long COVID.

Doesnt remember any data entered when setting up, the whole thing simply doesnt work.