Visible: Pacing for illness

When I saw this App I was very interested as I have CFS. It doesn’t mention ‘in App Purchases’ so I thought I’d give it a go. I’m happy to pay for in-app purchases but I wasn’t planning on spending £75 on an armband along with a minimum £10.99 - £14.99 a month subscription. Unless you subscribe and wear the band the App is virtually useless. All you can do is record your pulse from the camera and manually record how you’ve felt on a variety of questions. I already use Apple Health, a Withings Scale, Monitor my blood glucose levels and blood pressure with a variety of Apps which all share with Apple Health. This App doesn’t share anything or collaborate with any of my other health / monitoring Apps. Naively I had hoped to that an ME/Long Covid/CFS etc App would do a little more to inspire me on the free version so that I might be tempted to pay for the ‘not cheap’ membership. Quite pricey ‘in-app’ purchase. I’ve had a Whoop and that didn’t include blood pressure or blood glucose which I think are rather important gauges of health. Sorry to leave poor review but I was hopeful of something good to make me positive about my metrics unlike other apps that remind me I’m not achieving the best I can.

Absolutely amazing app! I have been using this for a long time now and can see from the tracking my improvement over the months. I am able to pace myself so much better and am now able to work part time. Now looking at getting the armband. Thankyou for developing this app!

I’ve been using visible for 3 months now and I don’t know how I got on without it! When I’ve gone way over my pace point budget (spoons) for the day, and I’m so fatigued the next day it makes sense, and helps me to stay within my budget so I can get back to my normal baseline! The only thing it doesn’t do is track your sleep, which I have a Fitbit for anyway so it’s not an issue. You can still also record how you slept, whether it be awful or great. I will continue to use visible and I can only see it improving from here. We need to spread the word for all our chronic illness friends out there and shout about the benefits of visible!

I've been using this for a few days and noticing it is definitely helping HOWEVER the only thing I don't like is that I can't connect it to my Apple Watch as this constantly monitors my HRV so this would be easier then remembering to do it each morning, I understand you can buy the strap for £75 but when I already have something that can do it I should be able to connect it

Having the Visible app and arm band has helped me track my energy levels much better.

This app is amazing for tracking illnesses, works very well for pacing etc. customer service in app is amazing, both great responses and speedy response times!😍

I’ve just been using visible with the armband for a few days and generally I’m enjoying using it. However I believe certain factors affect my heart rate which I cannot feed into the date collection. Also I would like more information about the significance of the breathing measurement.

I'm bedbound with long covid and because my only physical activity is going to the toilet I didn't have high hopes for visible. I wrongly thought there wouldn't be much to capture with my heart rate since most of my activity is mental. Visible has helped me to finally find my baseline. I've had the app and armband for a month and I've learned so much about my body and my capacity. Eating and chatting both use lots of my energy, and from one day to the next the same task can have a really different impact on my energy and heart rate. I was already pacing carefully before I had visible and was frustrated to still experience crashes when I couldn't identify any trigger. With visible, I can see that some days my heart rate is simply much higher and my body is out of balance - but I feel normal, so I'd never have realised that I need to limit my activity more. As a result I've already avoided 3 crashes in the last month. Obviously visible is a tool (the best tool I've come across) and it can't do the work of pacing for you. And not every type of exertion will affect your heart rate, so you still have to be careful with things like emotional and sensory exertion. But it's transformed my experience of long covid and I'm already making small improvements as a result.

Really helped my pacing and the breathing exercises have been great for helping me to rest and relax. Thanks Visible.

This app is a game changer for me. I suffer with ME and after 4 years of struggling to understand pacing I found this app and it’s made it so clear to understand what is going on with my body and has led to me having less crashes as I can see when my body is struggling way before I feel it.